We got great news.....the scans showed no worsening, no improvement just pretty much status quo. Which is very good.
The new doctor got a definite thumbs up. He is very, very detailed and optimistic but at the same time was quite serious when it came to the fact that although we had a great year, no obstructions, etc......we have to stay very diligent with this. He reminded us of the fact there is no cure....then, corrected himself and said the cure was the surgery - but, we don't want to go there (he included). And, although I know all of that...it just made me a little sad. We went over the fact that we can be having an noneventful day and then boom....be in surgery that afternoon. How critical it is to get to ACH asap, even if it is just suspected. How we will always have to deal with this, even later in life when he is 30, 40, 50 and beyond. The older he gets, the more difficult the surgery recovery. But, it may never happen again. So, that's what I am hoping and praying for.
I didn't want this to be a downer at all, because we really did get great news and for that I am VERY thankful. I think I had just become a little lax thinking we were getting past it. And, that's the thing, maybe we are. So, I will still be diligent with his emptying of the bladder routine. He was pulled aside and spoken to directly (in a sweet way) by the doctor with an explaination of the importance, how he knows it gets old for N when his friends don't have to go the restroom as often as he, how we have to keep these kidneys as healthy as possible, and how his mom and dad are truly not bugging him about it....that we are just taking care of him, etc....Noah responded well. Now if we can implement it better at school as it has been SUCH a challenge. Every year really.
But, great news and thanks to everyone for their calls, texts, voice mails, emails, etc. It means so much!!!
1 comment:
I am so glad you all were given good news. You have such a sweet family!!
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